Please Read

The following blog posts are based solely on my personal experiences. I am not a Doctor, Nutrition specialist, Comedian, or Professional Baseball Player. If you have a health, nutrition, humor, or baseball issue please seek a PROFESSIONAL.

Favorite Bathrooms

  • Home Sweet Home
  • When I'm @ someones house: the one farthest away from the crowd
  • @ the Mall: Macy's (as public bathrooms go this one is very nice)
  • If I can't make it to Macy's...JC Penney's will have to do (they recently remodeled so it is better than it was. I don't know why they didn't ask for my input???)
  • Monterey Bay Fish Grotto in Monroeville has a great bathroom
  • Ponte Vedra Inn and Club, My fav place to vacation, their rooms have the most wonderful bathrooms

Helpful links

  • FREE Crohns Disease Support Network
  • Find a Toilet
  • Medical Alert Restroom Access Pass

Monday, November 15, 2010

Not Your Average Patient

I went to see the oncologist Friday. She was very nice and I liked her very much. She is also very thorough; she spent a lot of time with me. After going through my entire medical history and examining me including abdomen and fistula (joy joy) she explained the treatment. Since I am not your average patient she will be watching me very closely. She is very concerned about how the treatment will affect my crohns and the fistula. She is going to work with my GI through the treatment. We may have to change my meds a bit. Since the chemo can cause inflammation she wants me to take steroids the day before, the day of, and the day after the treatments which will be every three weeks for 3 to 4 months. The fistula will be a challenge because in reality it is a chronic infection so we have to be very careful that it doesn’t flare and get worse. She wants me to be on an antibiotic during the treatment. She also thinks that she will need to watch my blood count and iron count even more than most patients due to the crohns and fistula. She wants me back on the B12 and depending on the results of my blood work possibly iron. I will probably have my treatments on Tuesdays because that is the only day of the week that she has office hours at the hospital that is closest to me. This way if there is a problem or I need to see her I can do it on the same day. I will probably start the treatments in two weeks. We have to get insurance approval and she wants me to have a PET scan first. Everything is going very quickly which is fine. I want to be feeling good by the spring baseball season. J and B are doing their winter workouts and conditioning and B is still in search of the right college to attend after graduation. Since I will be bald during the baseball season J’s coach gave me a redhawks knit cap to wear to the games. It will be perfect.

Love, Laugh, and Always know where the nearest bathroom is

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