Please Read

The following blog posts are based solely on my personal experiences. I am not a Doctor, Nutrition specialist, Comedian, or Professional Baseball Player. If you have a health, nutrition, humor, or baseball issue please seek a PROFESSIONAL.

Favorite Bathrooms

  • Home Sweet Home
  • When I'm @ someones house: the one farthest away from the crowd
  • @ the Mall: Macy's (as public bathrooms go this one is very nice)
  • If I can't make it to Macy's...JC Penney's will have to do (they recently remodeled so it is better than it was. I don't know why they didn't ask for my input???)
  • Monterey Bay Fish Grotto in Monroeville has a great bathroom
  • Ponte Vedra Inn and Club, My fav place to vacation, their rooms have the most wonderful bathrooms

Helpful links

  • FREE Crohns Disease Support Network
  • Find a Toilet
  • Medical Alert Restroom Access Pass

Monday, March 28, 2011

Its almost April…why is it so cold!!!

Its because I don’t have any hair isn’t it???? I have to go and sit at baseball games in the cold (30ish degrees) with three hats on and I’m still cold??? (Plus the layers and layers of clothing) But I do love to watch my boys play baseball and so far my crohns beast has been cooperating. If I eat an early lunch I’ve been able to make it through the game. Double headers are another matter! Now that things have settled down after the surgeries and chemo I need to get back to my gluten free diet. That should help baseball season go a little smoother. I still haven’t called to schedule my GI appointment…shame on me. I need to do that soon. I’m wondering what he is going to say about meds. I don’t want to go back on the cimzia (I don’t even know if that’s an option). Right now the Pentassa is working well so hopefully I can just stick with that. Of course he is going to want me to have the dreaded colonoscopy but that’s going to have to wait till all my plastic surgery is done. Turns out I may have to have some touchups done sometime in May or June. That’s ok thou because after everything I’ve been through I want my new boobies to look their best so I’ll do whatever I have to do :)

I’m happy to say that my hair is starting to grow back YEAH. Unfortunately its growing back on my legs and under my arms the fastest!!! BOO

Well no early lunch for me today (no lunch at all). I am off to meet J at the eye doctors and then B has a game at 4:00…Its 32 degrees right now!!! I think I need more hats!!!

Love, Laugh, and Always know where the nearest bathroom is

Tuesday, March 15, 2011

Here I am

So… I am….I didn’t get swallowed up by the couch! As a matter of fact I am happy to say I am spending less time on the couch. I had my swap surgery and I’m praying that all the painful stuff is behind me now. I am slowly, slowly getting my energy back. I’ve started exercising again and I will never complain about dragging myself out of bed to exercise. I actually missed it.

As for my behind (and intestine) I am doing pretty well. I’m back to my normal bathroom runs. The four to six times a day seems like nothing compared to the 12 to 16 times a day during the chemo. I’ve stopped taking the flagel and so far the fistula has been calm. I have started the Tamoxifen which is causing horrible hot flashes…blah!

I’ve shared with you many times how much I HATE needles! Well before my swap surgery, when the very nice pre-op nurse came into start my IV she said the words I dread “You have very small veins”. This is never a good sign. So after tap tap tapping my arm and hand she gives it a try in the side of my left hand…strike one! She tries in my right hand…strike two. Sorry Ms. Nice Nurse today rule is two strikes and you’re out. She goes to get another nice nurse who isn’t very confident either but she does get it into my left hand on her first try. Ughhhhhhh!

At least this surgery was not as uncomfortable as the last. My new perky boobs are in and hopefully once the swelling goes down and everything falls into place they will look great (at least under my clothing :)

I am due for an appointment with my GI doc. During my last visit, before all the cancer stuff, he wanted me to have a colonoscopy in March. The last time I talked to the nurse I told her it was going to have to wait. I need a break from poking, prodding, and removing things. She completely understood.

Well it is March already and March for us means BASEBALL. J already went to FL for his spring baseball trip. His team did very well. He has a DH today but it’s away. His first home game is Friday so I’m looking forward to that. B however has his first scrimmage game today Yeah! I am very very excited. They will be playing on the brand new high school turf field.

I’ll let you know how that goes!

Love, Laugh, and Always know where the nearest bathroom is