The Post I Forgot to Post!?!

I started this post after Christmas and then forgot to post it (chemo brain) so here it is :)
Once again this is on both blogs :p

Being home and hydrated made me feel very good. I haven’t had much energy but I also haven’t had much pain and I’m back to my normal for me poo routine. The fistula has also been behaving.

My hair started falling out (2 weeks after 1st chemo) so we had a little buzz cut event. My boys already have buzz cuts and B and J’s friend Jeff needed a trim so J buzzed Jeff first and then B. Then off with my hair :( but I have to say it doesn’t look that bad. J already looks a lot like me and now we look like twins hahaha. We took pictures but I don’t think I’ll post those. I went to pick up my wig the next day and it is wonderful. The color and style are just like my real hair. People will never guess it is a wig (if they don’t already know that is)

I was very disappointed to miss my beautiful niece CSD’s wedding. I just wasn’t feeling well enough and my doctors don’t want me to be around any large crowds to prevent being exposed to germs. Thankfully I have the most wonderful family in the world. My niece CRSA and my sister CAE sent me pictures during the ceremony and reception….THEN my amazing, beautiful, wonderful niece and brand new bride CSD, brand new hubby N, and her Mom (sister CAE) came to my house on Christmas Eve to reenact the wedding reception. With the wedding dress on, Mother of the bride dress on, bouquets in hand; they came down my staircase escorted by my son (in shorts and a tee-shirt hahaha.) I cried! I also dressed for the occasion and wore my wig. They brought a center piece, snacks, cookies, and cake. We took lots and lots of pictures, and then we ate, and the bride and groom cut the cake. My beautiful niece KRS and brother RJS and sister in law RJS were also in attendance. I can’t even find the words to express how wonderful and special this day was for me. I love you all so much xoxo.

I finished my online Christmas shopping but everyone got a lot less than normal. They weren’t disappointed tho because they are wonderful. Hubby wrapped everything for me on Christmas Eve evening…nothing like waiting till the last min. (of course I do that just about every Christmas ;) This year we did a 2 fishes Christmas Eve Dinner (as opposed to the 7 fishes). Christmas morning was very nice. We opened our presents and then went to CRA’s for a wonderful Christmas morning breakfast. The rest of the day was relaxing. Hubby cooked a nice Christmas Ham dinner and we watched our boys play Wii. I use to be good at these games but apparently it’s not like riding a bicycle!

xoxoxoxoxo
Love, Laugh, and Always know where the nearest bathroom is

Lets Make a Deal

I don’t like to complain so much but come on…. Why can’t I just have one disease at a time or at least only one active at a time. I’ve accepted that I have Crohns disease…after all I’ve been dealing with it for more than 20 years. I’ve almost accepted having breast cancer after all its only been three months (wow it has only been three months…it feels more like three years). So crohns (looking down at my belly), yes I’m talking to you. Could you please just back off till I get through the reconstruction and the chemo. Could you just sit back and let me put all my energy into growing new boobs and killing any stray cancer cells. Wouldn’t you rather hide from me while I’m bald and nauseous. You don’t need to keep reminding me that you were here first. You don’t need to be jealous…I will always like you better than cancer. You can relax and enjoy some time off. You’ve worked so hard all these years so how about taking a well deserved vacation. Better yet how about joining forces with me and fighting this cancer together. Instead of chewing on my intestine go gobble up any bad cells that are hanging around. Ya know if you would quit flaring my fistula I could have more energy to get through the cancer treatment. Just so you know the sooner I get through the cancer treatment the sooner it can be just you and me again. You could attack the cancer instead of me. You could be the crohninator, my very own Arnold. Tell the cancer “Hasta la vista, baby!” You could be Batman and I could be Robin. Come on, Crohns, to the Bat Cave! There's not a moment to lose! You can be Mario and I’ll be Luigi: Strap your belt on, kid. We're going in! Come on what do ya say??? Don’t make me come down there and kick your, well I guess it would be my ass!…PLEASE…I’m begging now!

Love, Laugh, and Always know where the nearest bathroom is

Not Your Average Patient

I went to see the oncologist Friday. She was very nice and I liked her very much. She is also very thorough; she spent a lot of time with me. After going through my entire medical history and examining me including abdomen and fistula (joy joy) she explained the treatment. Since I am not your average patient she will be watching me very closely. She is very concerned about how the treatment will affect my crohns and the fistula. She is going to work with my GI through the treatment. We may have to change my meds a bit. Since the chemo can cause inflammation she wants me to take steroids the day before, the day of, and the day after the treatments which will be every three weeks for 3 to 4 months. The fistula will be a challenge because in reality it is a chronic infection so we have to be very careful that it doesn’t flare and get worse. She wants me to be on an antibiotic during the treatment. She also thinks that she will need to watch my blood count and iron count even more than most patients due to the crohns and fistula. She wants me back on the B12 and depending on the results of my blood work possibly iron. I will probably have my treatments on Tuesdays because that is the only day of the week that she has office hours at the hospital that is closest to me. This way if there is a problem or I need to see her I can do it on the same day. I will probably start the treatments in two weeks. We have to get insurance approval and she wants me to have a PET scan first. Everything is going very quickly which is fine. I want to be feeling good by the spring baseball season. J and B are doing their winter workouts and conditioning and B is still in search of the right college to attend after graduation. Since I will be bald during the baseball season J’s coach gave me a redhawks knit cap to wear to the games. It will be perfect.

Love, Laugh, and Always know where the nearest bathroom is