The following essay is worth the read. It helps healthy people to understand what it feels like to make choices every day based on your health. It also helps people with a chronic illness explain what it’s like to make choices every day based on your health.
The author’s disease is very different then mine but I can relate to her and her daily choices, her spoons. I try very hard not to let this disease stop me from doing what I need/want to do. I definitely have to alter things and plan ahead depending on what I need/want to do on any given day. I would have to say baseball games are my biggest challenge for obvious reasons (no bathrooms) and way too important to me to miss. So I do what I’ve got to do and I’m thankful for the strength that God gives me to get through every day.