Please Read

The following blog posts are based solely on my personal experiences. I am not a Doctor, Nutrition specialist, Comedian, or Professional Baseball Player. If you have a health, nutrition, humor, or baseball issue please seek a PROFESSIONAL.

Favorite Bathrooms

  • Home Sweet Home
  • When I'm @ someones house: the one farthest away from the crowd
  • @ the Mall: Macy's (as public bathrooms go this one is very nice)
  • If I can't make it to Macy's...JC Penney's will have to do (they recently remodeled so it is better than it was. I don't know why they didn't ask for my input???)
  • Monterey Bay Fish Grotto in Monroeville has a great bathroom
  • Ponte Vedra Inn and Club, My fav place to vacation, their rooms have the most wonderful bathrooms

Helpful links

  • FREE Crohns Disease Support Network www.CrohnsDiseaseSN.com
  • Find a Toilet www.sitorsquat.com
  • Medical Alert Restroom Access Pass http://myibd.org/restroommedalert/index.php

Saturday, March 27, 2010

Oh My Gosh…..

Oh My Gosh…..I’m finally done with the Media Guide (takes a bow)! Its on a disk and I’m taking it to the printer today and NO ONE can stop me!!! Not players with late ads…Hello this fundraiser started Feb. 2nd and all ads were due Feb. 23rd and poor little johnie is still giving me ads on March 24th aaarrrrrrrrrrrrrrggggggggggg. Not Coaches who can’t seem to find the time to give the information I’ve asked 50 times for. Sorry it’s not going in. Why? Why you ask? Because of the yellers. Because of the yellers I decided that I would do it their way. Because for the previous two baseball seasons I have been the nice one waiting and waiting for players and parents and coaches to cooperate with me and give me what I need. I didn’t want to publish the media guide without yours and yours and your sons picture or profile or ads. I didn’t want to leave out the New Coaches profile or the returning Coaches updated information. I wanted to have a good team picture with all players not just half. So for the past two seasons I have put up with the yelling and moaning and groaning of people who love love love to complain. The people who just can’t keep their mouth shut - until you ask for volunteers. You know the ones. The ones who yell the loudest and do the least. They insist that it be done and to the printer by today no matter what is missing. Well you yellers have gotten your wish and the media guide will go to the printer today and guess what….there are names missing and pictures missing and profiles missing but hey that’s ok right. Right, until you realize that something about your son has been left out. So now I’ll get yelled at for that. It’s a no win situation but I’m ready for you. My answer to you is “Oh your son isn’t in there, oh that information isn’t correct or up to date….Sorry they didn’t meet your deadline”.

Oh My Gosh…..Someone please explain to me why….WHY….just when you think things might be improving (Crohns) something else gets worse. Just when you think one area is healing (Crohns) something else flares. Just when you think one medicine is helping (Crohns) another one fails or has an awful side effect. Up down, up down! Crohns is such a rollercoaster and I want to get off. The latest up is that I think being on the vitamin D and B12 (for only a week and a half) is helping. I wouldn’t go as far as saying I have my energy back but I’m not so exhausted that I feel like I’m going to pass out or throw up. I’m also having fewer headaches. Now here comes the butt (pun intended:). The latest down. My abscess/fistula which hasn’t bothered me in a long time (and I was just saying to someone that is has been great, no problems, the setons keep it under control. I swear that beast in my gut has ears). Well last Friday it got real bad. Pain like I haven’t had in a long time and closed…I usually have a little bit of drainage…no drainage at all. Of course being Friday evening I can’t call the doctor but I had some Cipro in the house so I started taking that. Fortunately Saturday it started to drain a lot. The pain continued till about Monday and has been off and on since. Btw, if you are wondering, its on today.

Oh My Gosh….B had his first scrimmage game a few days ago. I went, I saw, I took lots of pictures. He played well. I really enjoyed seeing him play again. He has been mentioned in a few local newspaper and online articles in the past few days. I will do a separate blog post with some of those highlights. I am so proud of him. J also had another game the other day. I wasn’t able to go because I had to get the blasted media guide done. Of course since I wasn’t there he pitched. They won! Woop! He closed the game. Three up three down. Awesome!!! I am so proud of him too. (see some pics from B's game below)

Again, thank you for your prayers. Please continue to pray for my family. My father in law continues to decline a little bit each day. They are saying that he may only live a few more days but I know from experience it can be a few more hours, days, or weeks. We know that it is in God’s hands and trust in his plans for us all. The nurses continue to keep him comfortable. He rarely opens his eyes and only takes a few bites of soft food a day. He sometimes responds to our voices and attempts to communicate but is not able to. Your thoughts and prayers are a blessing to us and very much appreciated.
Well that’s all for now. So until next time…..

Love, Laugh, and always know where the nearest bathroom is





Friday, March 19, 2010

The Week in Review

Monday I went back to the doctors to get the results of my blood work (trying to get to the bottom of all this joint pain and fatigue). I had her give me a copy of my results, something I intend to do from now on so that I can keep track of my health better. The good news is that my RA screen was negative. She had some concerns about my Thyroid level being on the high side based on new standards. Hypothyroid symptoms include muscle and joint pain, fatigue, weight gain is common even though appetite diminishes heavy periods, and mental activity— including concentration and memory—may become slightly impaired. I have experiences all of these except the weight gain; however, I have less appetite but I’m not losing any weight. My B12 was low, which can cause fatigue. I am now taking B12 under the tongue and will be recheck in May. If my B12 has not improved I will switch to the shots. My Vitamin D was deficient. This can cause bone pain and muscle weakness, as well as fatigue. I am now taking 50,000 IU once a week for 4 weeks then Vitamin D3 2000 IU daily. My Triglycerides are also high :( but I’m not really doing much different except the gluten free foods and now that I’m on the gluten free diet I eat less carbs. Maybe its because the food isn’t going through me as fast??? Everything else was good (all two pages of results). I will be having all these retested in May so heres hopping for improvement and MORE ENERGY!!!

A special thank you to everyone who has been praying for my father in law and my family. We are so thankful for your love and support. Please continue to pray. Wednesday was a difficult day. We had to take my father in law to the hospital. He is now in the last stage of lung cancer. My husband and brother in law tried to take care of him at home but it was getting too difficult. In the last few days he had become too weak to walk and started having a lot more pain. The pain meds/disease have been making him so confused, sometimes not knowing where he was or who his sons were, seeing people and things that aren’t there, angry one min. and raising his fist, then so sad and crying the next min. He is settled into a comfortable room and the wonderful nursing staff is regulating his pain meds and trying to keep him as comfortable as possible. The transition to the hospital has really worn him out and he has been sleeping most of the time. It is so hard to watch him go from such a strong independent man to this. I hate cancer. I have lost so many people I love to cancer.

On a happier note…J had his first home game of the season. It felt so nice (normal) to be out in the warm sun watching a baseball game. He is one of the many pitchers on the team and he did not pitch for this game :( so I went off (like I always do) and took some pictures of his friends. (see some pics below) He has a double header tomorrow so hopefully I will get to see him pitch and get some good pics of him. B has three scrimmage games next week (if the weather cooperates and the fields are playable). I am so excited that it is finally baseball season. I just hope I have the energy to get through it…….in the meantime

Love, Laugh, and always know where the nearest bathroom is







Thursday, March 18, 2010

I'm still here :)

Sorry for the lack of updates. It’s a very busy time of year for me, baseball season is starting for both my boys (j has his first game of the season today woohoo), I’m working on B’s high school baseball media guide, my father in law is in the hospital battling the final stage of lung cancer, and with hardly any energy to begin with…..well bear with me I hope to have some time tomorrow to update you on my last doctors appointment. Please keep my father in law and my family in your prayers. Thank you

Love, Laugh, and always know where the nearest bathroom is