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The following blog posts are based solely on my personal experiences. I am not a Doctor, Nutrition specialist, Comedian, or Professional Baseball Player. If you have a health, nutrition, humor, or baseball issue please seek a PROFESSIONAL.

Favorite Bathrooms

  • Home Sweet Home
  • When I'm @ someones house: the one farthest away from the crowd
  • @ the Mall: Macy's (as public bathrooms go this one is very nice)
  • If I can't make it to Macy's...JC Penney's will have to do (they recently remodeled so it is better than it was. I don't know why they didn't ask for my input???)
  • Monterey Bay Fish Grotto in Monroeville has a great bathroom
  • Ponte Vedra Inn and Club, My fav place to vacation, their rooms have the most wonderful bathrooms

Helpful links

  • FREE Crohns Disease Support Network www.CrohnsDiseaseSN.com
  • Find a Toilet www.sitorsquat.com
  • Medical Alert Restroom Access Pass http://myibd.org/restroommedalert/index.php
Showing posts with label Tests. Show all posts
Showing posts with label Tests. Show all posts

Tuesday, May 25, 2010

Friday was Fabulous! Monday was Horrible!

Guess what I got on my Fabulous Friday

My free sample of rice cakes…Three…3…yes three different kinds of Quaker Gluten Free Rice Cakes. Lightly salted, caramel corn and apple cinnamon. I’ve tried the apple cinnamon already and I love them. At first I was thinking I’m sure these are ok but I bet I’m going to need to spread something on them to give them a little boast but what??? Nope they are very very good all by themselves.

Saturday was very rainy but relaxing. Sunday was sunny and warm and we spent the day doing more yard work and vacuuming the pool. That may sound like work but it really feels good to stand by the pool in the warm sun and guide the vacuum around. Yes I know the vacuum should go around on its own but it always goes in the same pattern and misses spots or gets stuck somewhere or clogged.

Well thank goodness for fabulous Friday and relaxing Saturday and Sunday because Monday….yeah Monday was just plain horrible! CT Scan horrible, contrast drinking injecting gagging horrible.

Wake up…No food for you.

Arrive at hospital…wait…fill out forms…wait…register…wait…get forms back…wait…get IV started

Drink 3 bottles of contrast similar to this (my bottles were bigger about 32oz each I think blah)



Gag, gag, gag, gag, almost throw up, squeeze hubs fingers off, gag, gag, tantrum, gag, gag, almost throw up, beg hubs to drink some for me but even my most pathetic face can’t convince him (can’t say I blame him), gag, gag, must find bathroom (over about 45 min.) (vow [like I always do during this test] that I will NEVER have this test again)

Wait…(about 25 min)

Climb onto machine similar to this



Scaned

Injected with contrast similar to this



Scaned again

IV removed

All done

Must find bathroom

Home sweet home…eat…bed…nauseous the rest of the day…I hate Crohns

Love, Laugh and Always know where the nearest bathroom is…

Monday, April 12, 2010

Stress Stress Go Away, you flare my Crohns when you stay

I hate stress!!! I wish it just did not exist. No matter how well you take care of yourself a little bit of stress can undo it all. A lot of stress can really do major damage. For me Crohns + Stress = Pain and this weekend that equation was proven correct once again. I don’t know why I can’t just ignore haters. Actually I usually can ignore the haters who go at me but when you go at my kids, look out. I lose all control. It turns out that, even tho I was told Mr. FF would not be helping with B’s team, he is. (I mentioned him in my March 3rd post) He has been there constantly and he is up to his old tricks. Bad mouthing my son to other parents. Telling them that B sucks and shouldn’t be playing where he is playing bc player C (who happens to be related to him) is the best infield player the world has ever seen. To make matters worse he “claims” that the head coach agrees with him. Saturday was the third time I got a phone call from parents telling me about the hate he is spewing. Well enough is enough. I will be having a convo with the head coach tomorrow and I will make it perfectly clear (again) that I will no longer tolerate a member of his coaching staff bad mouthing my son to other parents. Especially when he is tearing my player down to build his player up. If the head coach does not put a stop to it immediately I will go to the athletic director. I don’t care who you are on the coaching staff or how you feel about any player, it is not appropriate for you to discuss any player with other parents. Every coach should be impartial and if he cannot distinguish between being a coach and being a relative then he should not be on the staff. He is also going after the infield coach (who decides who plays where) criticizing him to other parents, calling him a horrible coach and bringing up rumors from his past. All of this is playing out in front of the players and it is having a very negative impact. The players are very unhappy and it shows on the field. As I said in the beginning of this post Crohns + Stress = Pain. After boiling over this most of the day Saturday I ended up in typical Crohns pain on Sunday (which makes me even angrier at this man).

Well enough about that….thanks for letting me vent and you will be happy to know that so far today I do not have any pain. I have been back on my gluten free diet and the vitamin D and B12 continues to help. I am still very tired but not as bad as before and hopefully I will continue to improve and get my energy back. My doctor wants me to have a chest and abdominal CT Scan next. My insurance has approved it so I will try to schedule that in late May early June (in between high school and summer baseball). So that means another prep day and then drinking three bottles of horrible contrast right before the test. Blah! Oh Crohns I wish you would go away!

Love, Laugh, and always know where the nearest bathroom is