Please Read

The following blog posts are based solely on my personal experiences. I am not a Doctor, Nutrition specialist, Comedian, or Professional Baseball Player. If you have a health, nutrition, humor, or baseball issue please seek a PROFESSIONAL.

Favorite Bathrooms

  • Home Sweet Home
  • When I'm @ someones house: the one farthest away from the crowd
  • @ the Mall: Macy's (as public bathrooms go this one is very nice)
  • If I can't make it to Macy's...JC Penney's will have to do (they recently remodeled so it is better than it was. I don't know why they didn't ask for my input???)
  • Monterey Bay Fish Grotto in Monroeville has a great bathroom
  • Ponte Vedra Inn and Club, My fav place to vacation, their rooms have the most wonderful bathrooms

Helpful links

  • FREE Crohns Disease Support Network www.CrohnsDiseaseSN.com
  • Find a Toilet www.sitorsquat.com
  • Medical Alert Restroom Access Pass http://myibd.org/restroommedalert/index.php

Wednesday, September 8, 2010

In A Nut Shell

So here it is in a nut shell (well it’s more like a coconut shell):
Way back at the end of May I had a routine CT Scan for my Crohns (I blogged about this previously). Somewhere in late June I got the results which showed several things about my Crohns and a few non-crohns things. One was something near my uterus and the other appeared to be the cyst in my breast that has been drained many times. Since the something near the uterus was new I followed up with my GYN about that first. After some testing it proved to be just some fluid in my fallopian tube, no big deal, common when there is a lot of scar tissue in the abdomen. So then I scheduled a mammogram to check on the cyst and I was due for my yearly anyway. I was right, what they saw on the CT Scan was the same cyst but the doctor who looked at my mammogram noticed something else. So after more mammograms and ultrasounds and a biopsy the diagnosis was breast cancer. Let me just say that I thought there were a lot of doctors and test with Crohns hahaha but we have a new winner!!!. Here are the particulars in medical mumbo jumbo:

Diagnosis from core biopsy:
1. Invasive Lobular Carcinoma, Intermediate (this is good) Nuclear Grade
2. Lobular Carcinoma In Situ, Intermediate Nuclear Grade

Strongly positive for estrogen, strongly positive for progesterone (this is good, lots of success treating this type)
Negative HER-2/neu, score 1+ (1+ (negative = good))

MRI Findings:
No chest wall involvement (very good)
The mass is about 2.2 cm (small = early = good)

CT Scan:
Lungs clear. No nodules. No enlarged lymph nodes (good but won’t know for sure if there are any lymph nodes involved until surgery pathology is done)

Whole Body Bone Scan:
No evidence of bone metastases

No date for surgery (possible early to mid October). My surgeon is wonderful and very good of course. He is very positive and so am I.

Because of my strong family history of breast cancer (mom, sister, first cousin) I am having a double mastectomy, reconstruction (Yay for perky boobs), followed by chemo, and 5 years of tamoxifen

I saw the plastic surgeon yesterday and he is wonderful as well. We went over all the options and now he just needs to coordinate a date with the surgeon. So I am waiting by the phone and hoping I can get this over with as soon as possible.

I’ve stopped the Cimzia. I can’t be on any drugs that suppress the immune system. Today my tummy has been a bit out of wack so I am trying to stay relaxed and praying that the crohns beast will stay calm through all of this. I have the most wonderful family who has always given me so much love and support and (no surprise) they have been by my side every step of the way. I am usually what one might call a “worrier” and I have to admit that I cried almost nonstop through the testing and for about a week after the diagnosis but I am amazed (once I stopped crying) at how calm I’ve been. A calm that can only come from God. I am so blessed to have so many people praying for me.

“And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.” Philippians 4:7

“My faith is strong because I know my God is faithful, and His faithfulness is my shield”

2 comments:

Belinda said...

I believe living with Crohn's makes one a stronger person - especially deal with challenges like these.
May God give you the strength & wisdom you need!

Sweetpea said...

Thank you so much Belinda